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The National Institutes of Health Workshop on Fetal Treatment

Needs Assessment and Future Directions

From Vanderbilt University Medical Center and Northwestern University School of Medicine.

The National Institute of Child Health and Human Development and Office of Rare Diseases convened a multidisciplinary group of experts on August 16–17, 2004, for a workshop entitled ‘‘Fetal Treatment: Needs Assessment and Future Directions.’’ The purpose of the workshop was to develop a plan for the surgical, obstetric, neonatal, and maternal–fetal fields for the evaluation and dissemination of maternal–fetal surgical innovations and to further the scientific evaluation of maternal–fetal surgery. This article highlights the discussions and outlines recommendations for the future. An overarching recommendation was for the formation of a cooperative group of investigators and clinicians to help set a national agenda for research and clinical progress, as well as emphasize ethical issues.